What data is collected and processed
Data supporting the Share Your Care Personal Health Record service is sourced from health and social care organisations’ clinical and social care systems as well as GP clinical systems.
Data provided by service users themselves is also recorded in the shared care record system Share Your Care. Share Your Care is also known locally to health and social care professionals as Connected Care.
The Data Shared by Service Users
The categories of data used in the Share Your Care Personal Health Record service registration process are:
- Email address;
- Mobile number;
- First name; and
- Family name.
In addition to data provided during the registration process the categories of Share Your Care Personal Health Record service data that can be provided and managed by the service user are:
- All About Me:
- In an emergency
- Powers of Attorney
- Organ donation
- Future care
- Key safe
- I want you to know
- How I live;
- In an emergency
- My Record:
- Medications (over the counter, not prescribed); and
- Remember to ask.
Where you have been enrolled in an additional service (for example, a "Care@Home" virtual ward), additional information can be provided by you to support your care.
- For Care@Home, the additional information includes:
- Pulse rate
- Blood Oxygen Saturation (SATs)
- General wellbeing
It is important to note that the Share Your Care Personal Health Record service is not a real-time messaging and alerting system and health and social care professionals are not actively monitoring the data you provide. (The only exception to this is where you have been enrolled in an additional service such as Care@Home. If you have been enrolled in an additional service that includes active monitoring of the data you provide, you will be advised of the frequency and nature of the monitoring at the time you are enrolled.)
Where you have an urgent or emergency health or social care requirement you should contact the appropriate urgent or emergency service using the normal method.
The data shared by practices and health and social care providers
The categories of data shared from health and social care operational systems are:
- Person Details and Demographics;
- Hospital Activity:
- A&E attendances
- Waiting list;
- Hospital appointments:
- Future appointments
- Past appointments;
- Active problems
- Past problems;
- Social / Family History; and
- Where you are enrolled in a Care@Home virtual ward, advice on:
- Self-reporting of vitals, observations and symptoms
- The frequency of self-reporting.